Case Report

Volume: 6 | Issue: 2 | Published: Mar 01, 2024 | Pages: 129 - 132 | DOI: 10.24911/JBCGenetics/183-1698921213

Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy


Authors: Najla Binsabbar , Sadia Tabassum


Article Info

Authors

Najla Binsabbar

Division of Pediatric Neurology, Department of Pediatrics, King Abdullah Specialist Children's Hospital, National Guard Health Affairs, Riyadh, Saudi Arabia

Sadia Tabassum

National Neuroscience Institute, King Fahad Medical City, Riyadh, Saudi Arabia.

Publication History

Received: November 02, 2023

Revised: December 25, 2023

Accepted: January 23, 2024

Published: March 01, 2024


Abstract


Background: Infantile onset progressive leukoencephalopathy with or without deafness is an autosomal recessive neurodegenerative disorder with variable clinical presentation, manifesting in infancy or early childhood. This disorders is one of KARS1 gene mutation spectrum that results mostly from compound heterozygous mutations rather than homozygous mutations, resulting in a dysfunctional mitochondrial enzyme. Case presentation: We report our 4-year-old Saudi boy of non-consanguineous parents, with a compound heterozygous mutation in KARS1 gene presenting clinically with speech delay, bilateral sensonural hearing loss, unilateral progressive hemiparesis, iron deficiency anemia and lytic bone lesions. Conclusion: KARS1 mutation has a heterogenous phenotypic presentation, and variable clinical severity. We report a new clinical feature of lytic bone lesions which could potentially expand the phenotype of this genetic disorder spectrum. Early recognition of the clinical presentation is warranted to facilitate diagnosis, prognosis and appropriate family counseling.

Keywords: KARS1, leukoencephalopathy, developmental delay, hemiplegia, deafness, lytic bone lesions


Pubmed Style

Najla Binsabbar, Sadia Tabassum. Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. JBC Genetics. 2024; 01 (March 2024): 129-132. doi:10.24911/JBCGenetics/183-1698921213

Web Style

Najla Binsabbar, Sadia Tabassum. Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. https://www.jbcgenetics.com/index.php/articles/2093 [Access: April 27, 2025]. doi:10.24911/JBCGenetics/183-1698921213

AMA (American Medical Association) Style

Najla Binsabbar, Sadia Tabassum. Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. JBC Genetics. 2024; 01 (March 2024): 129-132. doi:10.24911/JBCGenetics/183-1698921213

Vancouver/ICMJE Style

Najla Binsabbar, Sadia Tabassum. Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. JBC Genetics. (2024), [cited April 27, 2025]; 01 (March 2024): 129-132. doi:10.24911/JBCGenetics/183-1698921213

Harvard Style

Najla Binsabbar, Sadia Tabassum (2024) Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. JBC Genetics, 01 (March 2024): 129-132. doi:10.24911/JBCGenetics/183-1698921213

Chicago Style

Najla Binsabbar, Sadia Tabassum. "Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy." 01 (2024), 129-132. doi:10.24911/JBCGenetics/183-1698921213

MLA (The Modern Language Association) Style

Najla Binsabbar, Sadia Tabassum. "Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy." 01.March 2024 (2024), 129-132. Print. doi:10.24911/JBCGenetics/183-1698921213

APA (American Psychological Association) Style

Najla Binsabbar, Sadia Tabassum (2024) Undiscovered Phenotype of KARS1 Related Mitochondrial Leukoencephalopathy. , 01 (March 2024), 129-132. doi:10.24911/JBCGenetics/183-1698921213